Welcome to the non-partisan Digital Politics Podcast with Karen Jagoda. Since 2007, this show has highlighted impact of new technologies on the campaign landscape, how expectations of voters are changing, role of online fundraising, digital and traditional means of persuasion and getting out the vote. In this time of the COVID-19 Pandemic, changes in the behavior of voters, restrictions on candidates and the new normal for retail politics are all under the microscope.
Popular topics on the show include best practices for political and advocacy campaigns, ground game strategies, cross-media advertising, social media trends and impact of mobile on engaging supporters.
This weekly podcast includes interviews with political consultants, media strategists, journalists, advocates, candidates, elected officials, campaign managers, and solution providers.
Digital Politics Podcast with Karen Jagoda has been included in the Feedspot 70 Best Non Partisan Podcasts worth listening to in 2023. Check out the list here
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May 21, 2024
Daniel Barvin, Founder of the End the Legacy Foundation, is also the VP of Operations and Patient Advocacy at Coya Therapeutics. Coming from a family with a genetic predisposition to develop ALS, Daniel has brought together a community of activists who are intent on educating doctors and patients about early diagnosis and testing. This organization is also raising awareness about the need for more research and funding to cure genetic ALS and FTD.
Coya Therapeutics is developing diagnostics and treatments for genetic ALS and FTD, and Daniel is bringing the voices of the patients and family members to the table.
We talk about:
- Why there is a need for another ALS organization
- How the End the Legacy Foundation is using social media to build awareness and supporters
- The Genetic ALS and FTD Community Summit
- Building partnerships with researchers, industry and government
- Implications for families with inherited diseases
#EndtheLegacy #ALS #GeneticALS #ALSandFTD #GeneticDiseases #RareDiseases #Activism #InheritedDiseases
Interview on EmpoweredPatientPodcast
Transcript of Coya Therapeutics interview
